Evan's appointment with the pediatric neurologist went pretty well today. Our concerns were confirmed. What is happening to him is real and has a name. The specialist said that Evan has a "Chronic Tic Disorder". It is on the same spectrum as Tourettes Syndrome. Tourettes has two components, a verbal and a motor tic. At this time, Evan is only displaying a motor component. He met the criteria of having the tic for at least a year and has not had a three month period without the tic. He has the tic at least once a day, and most times, multiple times.
As I mentioned before, we had noticed this with him, but thought it was just a bad habit. Over the course of the year, we have noticed it getting worse and to the point where his teacher mentioned her concern to us at conferences. She was also concerned about his "repeating/stuttering" which we hadn't noticed, or we were just used to it. Once she mentioned it to us, we did see what she meant. It happens especially when he is engaged in a conversation with you.
Anyway, in visiting with the doctor today, much of what he explained made a lot of sense to us. And much of it is what we see in Evan. He said there is a very strong correlation between Tic Disorder and Anxiety. Many of the diagnosed patients also struggle with ADHD, which we are thankful is not an issue with Evan. We can't really say that he has a lot of issues with anxiety other than he has a lot of perfectionist tendencies, especially at school. When we thought about it, Evan repeats himself or gets stuck on a sentence or word when he is telling a story or explaining something. It is almost like he has to repeat himself until he has the information correct, and he cannot move on until he has it right. His teacher had explained this to us, and I know at school, he is very concerned about doing the right thing and being a "perfect student" which explains why she noticed it a lot more than we did.
The research on Tic Disorder says that the symptoms usually present themselves between 5-7 years old. The symptoms peak around age 10-12. In 1/3 of the patients, the symptoms go away, 1/3 stay the same and 1/3 get worse. There is no medical reason that they can link to this and the specialist said that if they were to do a CAT scan or MRI, the brain would look completely normal. Treatments often include medication, but there are many side effects for the medications that are most effective. Most times, the Tic bothers parents and teachers more than the child.
At this time, we are not going to pursue the medication route. If it becomes worse in the future or begins to interrupt with his school success, then we can follow-up with the pediatric neurologist.
So, we didn't get a lot "done" today, but did get a lot of answers. It was pretty much what we had expected and we are thankful that in his neurological examination, nothing more was detected.